This site uses cookies. Some are essential while others improve your browsing experience and allow us to advertise. For more info visit the privacy policy page.

Allow inessential cookies for:

Your preferences have been updated.

Page 43 of 43 FirstFirst ... 33414243
Results 421 to 427 of 427

Thread: Our vaccination experiences

  1. #421
    Senior Member Pegmeister's Avatar
    Join Date
    Nov 2009
    Location
    Any beach!!
    Posts
    7,438
    Post Thanks / Like
    Quote Originally Posted by act1966 View Post
    Ugh. Even more reason for the world to get vaccinated and stop the mutation of variants. Thanks for the update, Peg. My friend (also a transplant recipient in Canada), is going on a rampage against non-vaxxers to save her own skin. She ain't messing around.
    I so understand your friend’s reaction! The MGH message was difficult and we have mixed emotions about it. Tom is adamant that he is going to Vegas in October. Now I’m hesitant. It’s just a lot to absorb at the moment.

    1 0
     

  2. #422
    Senior Member robin's Avatar
    Join Date
    Nov 2016
    Location
    Eagle Beach, Oceania, north side
    Posts
    4,768
    Post Thanks / Like
    Quote Originally Posted by Pegmeister View Post
    I know these older COVID threads will be going away and while it would be nice to see them gone and just move on, I have some information to share about vaccinations for those who are immunosuppressed. We received an email today from Mass General Hospital regarding the vaccinations and those who have had organ transplants. They stated that transplant patients should continue to follow the COVID guidelines even if fully vaccinated. It is recommended to wear masks, socially distance, refrain from visiting friends/family who are not in the same household and NO AIR TRAVEL!!! We had already cancelled our August Vegas trip because of Tom’s radiation treatments so while it’s not an immediate issue for us it’s still an issue. They are NOT recommending a third vaccination. They are also not testing patients for antibodies as they don’t feel it is a reliable indicator. I felt it was important to share this info for anyone else who may be taking immunosuppresants.
    Stu was told that they are finding that those who take immunosuppressants may not produce the antibodies the rest of produce. They are still studying it. They did not say no air travel, but did say to keep Covid protections in place as 46% of transplant patients did not produce antibodies.






    0 0
     

  3. #423
    Senior Member Pegmeister's Avatar
    Join Date
    Nov 2009
    Location
    Any beach!!
    Posts
    7,438
    Post Thanks / Like
    Quote Originally Posted by robin View Post
    Stu was told that they are finding that those who take immunosuppressants may not produce the antibodies the rest of produce. They are still studying it. They did not say no air travel, but did say to keep Covid protections in place as 46% of transplant patients did not produce antibodies.
    I wondered what others were hearing from their transplant centers. Tom takes a pretty low dose so hoping that will help.

    0 0
     

  4. #424
    Senior Member robin's Avatar
    Join Date
    Nov 2016
    Location
    Eagle Beach, Oceania, north side
    Posts
    4,768
    Post Thanks / Like
    Quote Originally Posted by Pegmeister View Post
    I wondered what others were hearing from their transplant centers. Tom takes a pretty low dose so hoping that will help.
    Copy and pasted email from May 26th.

    COVID Vaccine Update

    May 26 th, 2021To Our PatientsA recent news segment featuring the personal experience and opinions from two U.S. transplant physicians regarding 3 rd doses of COVID vaccination and testing for COVID-19 antibodies has led to questions from many transplant patients at our center as well as centers across the country. The Penn Transplant Institute, in full alignment with the CDC and the American Society of Transplantation expert community, would like to clearly address our patients’ concerns regarding these topics. Regarding 3 rd COVID-19 vaccine doses and/or re-vaccination after prior vaccination:
    • At this time, we do not have definitive data to suggest that 3rd vaccine doses or re-vaccination decreases symptoms or severity of COVID-19 infection, or that it increases protection amongst COVID-19 infection in transplant patients. Therefore, we do not currently recommend obtaining an additional booster vaccine if you have already been fully vaccinated.

    Regarding COVID-19 antibody testing after vaccination:
    • Currently there is no standard value to tell us what a protective level of antibody is and it is likely that true protection against COVID-19 involves multiple parts of the immune system; antibody is only one of these parts. Additionally, there is a high level of variability between the multiple different antibody testing platforms being used in laboratories. At this time the Food and Drug Administration (FDA) specifically recommends AGAINST antibody testing following vaccination. For all of these reasons, and in keeping with the FDA guidance, Penn Transplant does not recommend obtaining routine antibody testing after you have been vaccinated.

    We continue to recommend the following:
    • If you are awaiting transplant or are at least 1 month after transplant and have not been vaccinated, please speak with your provider about getting vaccinated.
    • Make sure your household members and close friends, family, and co-workers all get vaccinated.
    • If you are planning to get vaccinated, do not change your immunosuppression unless your provider recommends that you do so.
    • Continue to protect yourself by wearing a mask when you are outside of your home and/or around unvaccinated people who you do not live with and practicing social distancing and washing your hands frequently. This includes when you are on the Penn campus or in one of our buildings, where masking is still mandatory.

    We understand your concerns in the face of the ongoing COVID-19 pandemic and restrictions being lifted in many areas, especially with healthcare figures suggesting other possible strategies for COVID-19 vaccination and antibody testing in the media. With the rapidly evolving literature, recommendations regarding booster vaccine and/or additional testing could change in the future, and we will be sure to inform you as soon as formal studies support changing our recommendations. As always, if you have questions about your particular situation, please do not hesitate to reach out to your team at Penn Medicine.






    0 0
     

  5. #425
    Senior Member Pegmeister's Avatar
    Join Date
    Nov 2009
    Location
    Any beach!!
    Posts
    7,438
    Post Thanks / Like
    I didn’t realize I could copy the message from the portal so here it is. The major difference seems to be that MGH has restrictions even if all are vaccinated. That and, of course, the airline travel.

    COVID Update


    The CDC has released guidelines about activities individuals can resume once fully vaccinated, and we understand that everyone has questions about whether these guidelines apply to you, as the CDC has also recommended that immunosuppressed patients should discuss further with their providers. We have made the following video with detailed information specifically for transplant patients at
    https://youtu.be/hbrFLzbVFTA
    so that you will not have to make individual appointments or wait to call us to receive this information.

    To summarize, we recommend that transplant patients continue following COVID precautions even if you have been vaccinated, as we are still learning about how much protection the vaccine gives organ transplant patients. Early studies indicate that patients taking immunosuppressants may not develop immunity after receiving the vaccine. While the CDC has stated that fully vaccinated individuals can visit with other fully vaccinated people indoors without wearing masks and physical distancing, we ask that you refrain from gathering with individuals who are not in your household, regardless of vaccination status. We recommend that you maintain vigilance once you are fully vaccinated by doing the following:

    o Wear a well-fitting mask when outside your home, as per recent CDC guidelines
    o Wash your hands frequently, especially before eating.
    o Stay at least 6 feet (2 arms lengths) apart from others that don't live with you.
    o Avoid crowds and poorly ventilated spaces. The more people you are in contact with, the more likely you are to be exposed to COVID-19.
    o You should not gather with family/friends who do not live in your household, unmasked and less than 6 feet apart, despite their vaccination status. Vaccinated individual might be able to spread the virus to others.
    o We do not recommend airplane travel at this time.
    We are not recommending antibody testing and we are unable to order antibody testing because antibody testing has not been shown to be the best method to determine immunity. We do not know what level of antibodies would provide protection in transplant patients, so if you have had antibody testing doneby another provider, we are unable to interpret these results.

    We, and the CDC are not recommending a booster vaccine at this time, but ongoing research studies by multiple centers are assessing additional strategies to enhance the immunity against SARS-Cov2 without impacting the organ transplant. As more information is gathered from research studies, we will let you know of any updates.



    Last edited by Pegmeister; 06-17-2021 at 06:55 PM.

    0 0
     

  6. #426
    Senior Member robin's Avatar
    Join Date
    Nov 2016
    Location
    Eagle Beach, Oceania, north side
    Posts
    4,768
    Post Thanks / Like
    Thanks Peg. It's interesting what each healthcare system is recommending.

    Quote Originally Posted by Pegmeister View Post
    I didn’t realize I could copy the message from the portal so here it is. The major difference seems to be that MGH has restrictions even if all are vaccinated. That and, of course, the airline travel.

    COVID Update


    The CDC has released guidelines about activities individuals can resume once fully vaccinated, and we understand that everyone has questions about whether these guidelines apply to you, as the CDC has also recommended that immunosuppressed patients should discuss further with their providers. We have made the following video with detailed information specifically for transplant patients at
    https://youtu.be/hbrFLzbVFTA
    so that you will not have to make individual appointments or wait to call us to receive this information.

    To summarize, we recommend that transplant patients continue following COVID precautions even if you have been vaccinated, as we are still learning about how much protection the vaccine gives organ transplant patients. Early studies indicate that patients taking immunosuppressants may not develop immunity after receiving the vaccine. While the CDC has stated that fully vaccinated individuals can visit with other fully vaccinated people indoors without wearing masks and physical distancing, we ask that you refrain from gathering with individuals who are not in your household, regardless of vaccination status. We recommend that you maintain vigilance once you are fully vaccinated by doing the following:

    o Wear a well-fitting mask when outside your home, as per recent CDC guidelines
    o Wash your hands frequently, especially before eating.
    o Stay at least 6 feet (2 arms lengths) apart from others that don't live with you.
    o Avoid crowds and poorly ventilated spaces. The more people you are in contact with, the more likely you are to be exposed to COVID-19.
    o You should not gather with family/friends who do not live in your household, unmasked and less than 6 feet apart, despite their vaccination status. Vaccinated individual might be able to spread the virus to others.
    o We do not recommend airplane travel at this time.
    We are not recommending antibody testing and we are unable to order antibody testing because antibody testing has not been shown to be the best method to determine immunity. We do not know what level of antibodies would provide protection in transplant patients, so if you have had antibody testing doneby another provider, we are unable to interpret these results.

    We, and the CDC are not recommending a booster vaccine at this time, but ongoing research studies by multiple centers are assessing additional strategies to enhance the immunity against SARS-Cov2 without impacting the organ transplant. As more information is gathered from research studies, we will let you know of any updates.









    0 0
     

  7. #427
    Senior Member Pegmeister's Avatar
    Join Date
    Nov 2009
    Location
    Any beach!!
    Posts
    7,438
    Post Thanks / Like
    Definitely mixed messages. We’re still trying to process what we think about it

    0 0
     

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •